Cystic Fibrosis Association of Slovenia is a non-profit organization in Slovenia, Europe. The foundation was established at the end of 2009 and is a member of the European Cystic Fibrosis Society (ECFS) and Cystic Fibrosis Europe (CFE), a section of international CF organization Cystic Fibrosis Worldwide (CFWW). Before it was a part of of Pulmonary and Allergic Patients Association of Slovenia.
The purpose of our association is to assist all patients affected with cystic fibrosis and their families in achieving the highest possible quality of life. The society is aimed at addressing and alleviating social distress and difficulties of people, providing assistance to people whose health or life is threatened, and strengthening public health.
Our goal is to inform general public about CF and various aspects of life of CF patients in our country.
Our planned activities:
- press conference on Rare diseases day in February
- two days event (lectures about CF, workshops) in June
- cystic fibrosis awareness week in November